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Trinity Ewert Foundation
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Our Mission: We are passionately committed to support and help improve the quality of life of children and their families who are coping with severe blood disorders, related bone marrow disorders, and cancer, through financial, emotional, and educational assistance.
Until cures are found, we strive to provide families with a compassionate, loving, and caring environment.
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Our Vision: Year after year, we continue to support parents and their children with the resources they desperately need to cope with their child's illnesses. We inspire others to make the best of life today, because we are not promised tomorrow. By providing for families in the time of need, we then encourage them to further the vision by giving back to others.
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"I have experienced unnerving, emotional distress during Trinity's courageous battle with Aplastic Anemia, and I undersand the helplessness and disparity that parents and families go through during these trying times. Only those who have been through such anguish are truly qualified to convey with absolute clarity what a horrific experience it was for them or continues to be. It is my hope that the foundation's programs will in some way lessen the trauma that families experience as they helplessly watch their gravely sick child struggle for survival."
- Marichiel Ewert, Founder
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Our Story: Shortly after Trinity's 2nd birthday, she was admitted to the hospital for unsual bruising and petechiae, (blood freckles). She spent 3 weeks in ICU where she underwent tests, almost bled to death from a bloody nose, was poked with needles until her veins were unaccessible, had surgery to have her bone marrow aspirated and chips of bone removed for testing, and regularly infused with red blood and platelets. Trinity was diagnosed with Aplastic Anemia, an extremely rare bone marrow disorder in which her bone marrow stopped producing blood cells.
Trinity touched the lives of people across the country who somehow heard word about her battle.
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Since neither of her parents or her younger brother were a bone marrow match, Trinity went through ATG/cyclosporine immunosuppresive drug therapy. Trinity's blood counts rose and fell for the next 6 months and she was in and out of the hospital for blood and platelet infusions. Despite adjusting to hospital life, Trinity kept in high spirits. She was born strong-willed and her strength, love, and compassion were evident to anyone that met her. The day Marichiel, (founder and Trinity's mom), was supposed to return to work, friends of the family, (Rob & Kelly Fabros), stopped by for a visit. They gave Nathan & Marichiel a check in the amount large enough to cover their living expenses for a couple months. That moment, Marichiel told herself she would one day be able to do this for another family. Financial support came from strangers which allowed the family the greatest expression of love: time.
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On Wednesday, April 5, 2006, our beautiful little Trinity experienced an event which is common to children such as herself with Aplastic Anemia. She had been her usual, playful self all morning, and then simply complained of a headache. Within minutes she lost consciousness. She was taken to the hospital, where doctors found that she had a tremendous amount of bleeding inside her brain. Although the doctors were able to stop the bleeding, serious damage had occurred to her brain and it was not expected that she would survive that situation. On April 7th at 1 o'clock in the morning with her parents by her side, Trinity's breathing tube was removed and she slipped away into heaven.
Through her life and death, Trinity continues to touch people's lives. This foundation is dedicated to children like her, and the families that love them.
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